Oh my goodness! It has been over a year since I last wrote something for you great folks! Ben is doing amazing; just excelling beyond what we ever could even imagine! He is speaking in sentences -- many, many sentences. We have ordered his first power chair for school! Most recently we moved into a handicap accessible apartment which will be great for his wheelchair. So many wonderful things happening!
We are also doing a fundraiser for our precious little guy! http://www.gofundme.com/5o5lec
Please feel free to donate/share! Any amount is appreciated!
Thank you for visiting our page!
Joy
Thursday, June 19, 2014
Thursday, February 14, 2013
What a Crazy Life We Lead!
Wow! What a crazy few months it has been! We relocated in May to a suburb of Oklahoma City. Absolutely loving it! It is one of the best school systems in the state of Oklahoma. The boys are really thriving in this new district, especially Ben. He attends the same school as his brother, where he goes to a morning class for developmentally delayed 3 year olds. He has three amazing teachers, a physical therapist, an occupational therapist, and a speech therapist. His speech went from very little to putting up to 3 words together. Absolutely thrilling to watch him excel and enjoy himself so much!
When we relocated to a new job, we also got new insurance. Unfortunately we didn't realize that it does not cover DME's, so we have to wait for the next open period for us to switch to one that does cover them. Until then we have nothing that covers equipment, which really hurts us. Ben no longer receives SSI, but we are having issues with getting a denial letter. I went up to the social security office once, was told I should get one, but have not gotten one still - months later. But, I would like to avoid going back to the office since it is not in a wonderful neighborhood. If worse comes to worse, I will do what I have to do. When we do finally receive our denial letter, we will be able to apply for TEFRA, which will cover what our insurance does not. Since we do not qualify for anything else, our hands are just going to remain tied for now.
We will be going back to Shriner's Hospital for Children in Shreveport, LA in March to get him checked out and hopefully get his AFO's repaired. I'll try to update more often, but no promises! :)
When we relocated to a new job, we also got new insurance. Unfortunately we didn't realize that it does not cover DME's, so we have to wait for the next open period for us to switch to one that does cover them. Until then we have nothing that covers equipment, which really hurts us. Ben no longer receives SSI, but we are having issues with getting a denial letter. I went up to the social security office once, was told I should get one, but have not gotten one still - months later. But, I would like to avoid going back to the office since it is not in a wonderful neighborhood. If worse comes to worse, I will do what I have to do. When we do finally receive our denial letter, we will be able to apply for TEFRA, which will cover what our insurance does not. Since we do not qualify for anything else, our hands are just going to remain tied for now.
We will be going back to Shriner's Hospital for Children in Shreveport, LA in March to get him checked out and hopefully get his AFO's repaired. I'll try to update more often, but no promises! :)
Saturday, June 23, 2012
New Page!
Hello all!
I have added a new page titled, "Ben's Story". So if you were ever curious about how he was diagnosed or why, hopefully that'll answer some questions! If you have any others feel free to ask!
I have added a new page titled, "Ben's Story". So if you were ever curious about how he was diagnosed or why, hopefully that'll answer some questions! If you have any others feel free to ask!
Sunday, June 10, 2012
Welcome to Oklahoma City, Easley family.
Ben met his new SoonerStart team this past Thursday. They loved Ben and he seemed to do okay with them; but we'll officially start our sessions next week.
So far, everything is okay. Not great yet, but okay. We are still working out a new schedule that works for us here.
I think he's doing better with the change than I am.
Change is good.
Change is good.
Change SUCKS.
Sorry for the negativity there, we've had a really difficult couple of weeks. We moved in on the 25th. On the 29th, our cars received almost $13k worth of hail damage.
Also, our neighbors 2 floors up don't require sleep on the weekends. It is past 1:00 in the morning and they are still going strong. Curse this awesome hearing of mine! I'm never going to get a goodnights sleep again on Fridays/Saturdays.
Welcome to Oklahoma City, Easley family.
P.S. Ben is sleeping wonderfully. He won't sleep without some kind of noise, so it seems to be working for him.
So far, everything is okay. Not great yet, but okay. We are still working out a new schedule that works for us here.
I think he's doing better with the change than I am.
Change is good.
Change is good.
Change SUCKS.
Sorry for the negativity there, we've had a really difficult couple of weeks. We moved in on the 25th. On the 29th, our cars received almost $13k worth of hail damage.
Also, our neighbors 2 floors up don't require sleep on the weekends. It is past 1:00 in the morning and they are still going strong. Curse this awesome hearing of mine! I'm never going to get a goodnights sleep again on Fridays/Saturdays.
Welcome to Oklahoma City, Easley family.
P.S. Ben is sleeping wonderfully. He won't sleep without some kind of noise, so it seems to be working for him.
Thursday, May 10, 2012
A Brand New Adventure
Our life with Ben is about to change tremendously! For the better, we hope!
As some of you may or may not know, we live in a small town in southern Oklahoma. While it may be a good place to raise your children, it lacks the resources we need for a specially abled child such as Ben. So, we are spreading our wings and going north to a suburb of Oklahoma City. We will be closer to his neurologist and opthamologist. Plus, many other resources will be available to him! Please keep us in your thoughts and prayers (if that is your thing) while we make the move and that it is an easy transition for us.
We are letting our oldest finish school here, so we will not be moving until after that is all done.
I have pictures of Ben's new braces that he received from Shriner's at our last visit to Shreveport, LA. I will do my best to remember to post them within a day or two.
Please be patient with me over the next few weeks!
Thank you!
As some of you may or may not know, we live in a small town in southern Oklahoma. While it may be a good place to raise your children, it lacks the resources we need for a specially abled child such as Ben. So, we are spreading our wings and going north to a suburb of Oklahoma City. We will be closer to his neurologist and opthamologist. Plus, many other resources will be available to him! Please keep us in your thoughts and prayers (if that is your thing) while we make the move and that it is an easy transition for us.
We are letting our oldest finish school here, so we will not be moving until after that is all done.
I have pictures of Ben's new braces that he received from Shriner's at our last visit to Shreveport, LA. I will do my best to remember to post them within a day or two.
Please be patient with me over the next few weeks!
Thank you!
Wednesday, April 11, 2012
We're back!
Last week, we made the long trek down to Shriner's Childrens Hospital in Shreveport, LA. He is growing out of the braces for his feet so he was measured for some new ones that actually fit. We picked out Dallas Cowboy ones and we can't wait to go pick them up! What a blessing Shriner's is; without them I'm not sure how we'd be able to provide braces for our little man. They also talked to us about some new stretches for his arms and legs & gave us new braces for his hands as well. He will go back May 3rd for those new foot braces then we won't go back again until October 2012.
The day before we went to Shriner's we had an appointment with Ben's pediatric opthamologist and scheduled surgery for his eyes. If all goes well and we can manage to scrape the 20% for the surgery center and the surgeon, he will have the surgery this coming Friday. It will be one of two surgeries for the year. Three muscles will be corrected on one eye this go around and it should take about 1 1/2 hours. It will be outpatient, so he will go home that day.
We also received each piece of equipment that we ordered and his stroller is wonderful! It provides so much more support than the loaner we had, it's unbelievable how awesome it is for him. I would describe it as the cadillac of special strollers.
Now that you're all up-to-date, here are a couple of pictures from our trip to Shreveport and Easter. Enjoy!
The day before we went to Shriner's we had an appointment with Ben's pediatric opthamologist and scheduled surgery for his eyes. If all goes well and we can manage to scrape the 20% for the surgery center and the surgeon, he will have the surgery this coming Friday. It will be one of two surgeries for the year. Three muscles will be corrected on one eye this go around and it should take about 1 1/2 hours. It will be outpatient, so he will go home that day.
We also received each piece of equipment that we ordered and his stroller is wonderful! It provides so much more support than the loaner we had, it's unbelievable how awesome it is for him. I would describe it as the cadillac of special strollers.
Now that you're all up-to-date, here are a couple of pictures from our trip to Shreveport and Easter. Enjoy!
Wednesday, March 21, 2012
Spring Break.
I have been working on a another awareness post, but these past several days have been pretty bumpy. I promise I haven't disappeared completely. Once things clear up and everyone starts feeling "normal" again, I'll start writing more updates.
Have a great week!
Have a great week!
Subscribe to:
Posts (Atom)