Wow! What a crazy few months it has been! We relocated in May to a suburb of Oklahoma City. Absolutely loving it! It is one of the best school systems in the state of Oklahoma. The boys are really thriving in this new district, especially Ben. He attends the same school as his brother, where he goes to a morning class for developmentally delayed 3 year olds. He has three amazing teachers, a physical therapist, an occupational therapist, and a speech therapist. His speech went from very little to putting up to 3 words together. Absolutely thrilling to watch him excel and enjoy himself so much!
When we relocated to a new job, we also got new insurance. Unfortunately we didn't realize that it does not cover DME's, so we have to wait for the next open period for us to switch to one that does cover them. Until then we have nothing that covers equipment, which really hurts us. Ben no longer receives SSI, but we are having issues with getting a denial letter. I went up to the social security office once, was told I should get one, but have not gotten one still - months later. But, I would like to avoid going back to the office since it is not in a wonderful neighborhood. If worse comes to worse, I will do what I have to do. When we do finally receive our denial letter, we will be able to apply for TEFRA, which will cover what our insurance does not. Since we do not qualify for anything else, our hands are just going to remain tied for now.
We will be going back to Shriner's Hospital for Children in Shreveport, LA in March to get him checked out and hopefully get his AFO's repaired. I'll try to update more often, but no promises! :)
