So. Yeah.

Life is pretty much the same in the world of Ben. Although he has started jabbering more often and repeating more words. Last night he said 'Papa' back to us and we were so proud! He is getting to where he has more desire to communicate and I love it!

He is having to wear a patch each day over his eye. We have been seeing a Pediatric Opthomologist in OKC. Long drive, but totally worth it. In order to (hopefully) avoid surgery, we are alternating between the eyes each day to make them both stronger. Crossing our fingers for NO surgery! I will write more on that later.

Next week we will be in Shreveport, Louisiana to visit the Shriner's Hospital for Ben's first evaluation! Definitely an exciting time for us, but especially Ben. He will also see a Pediatric Neurologist in OKC on October 10th. This will be done as per request by the Shriner's. Plus, it's something we would have to do eventually. So might as well do it now!

Hope all is well in your part of the world.

Joy




- Posted using BlogPress from Joy's iPad

A Glimmer of Hope

We have officially been approved by Shriner's to recieve care for Ben! Hopefully now we can get some braces for his feet/legs so we can start working on putting weight on them. The approval just happened on Thursday of last week, so I'm still not sure exactly how everything is going to happen. I do know we will be going the first week of October to the Shriner's in Shreveport, LA and I can't wait!

Our biggest obstacle right now is getting him a neurological exam. It is apparently harder to get one than I thought. Especially when you're dealing with a difficult front desk employee at your pediatrician, from whom you require a referral. UGH! Is it hard to hire people that are friendly and helpful? Or maybe just helpful? I would take helpful and not friendly because then something would be getting done. I guess all I can do is be patient. But it's so hard when the care of your child hangs in the balance!

I'll try to keep you updated on the progress through Shriner's.