Oh my goodness! It has been over a year since I last wrote something for you great folks! Ben is doing amazing; just excelling beyond what we ever could even imagine! He is speaking in sentences -- many, many sentences. We have ordered his first power chair for school! Most recently we moved into a handicap accessible apartment which will be great for his wheelchair. So many wonderful things happening!
We are also doing a fundraiser for our precious little guy! http://www.gofundme.com/5o5lec
Please feel free to donate/share! Any amount is appreciated!
Thank you for visiting our page!
Joy
Thursday, June 19, 2014
Thursday, February 14, 2013
What a Crazy Life We Lead!
Wow! What a crazy few months it has been! We relocated in May to a suburb of Oklahoma City. Absolutely loving it! It is one of the best school systems in the state of Oklahoma. The boys are really thriving in this new district, especially Ben. He attends the same school as his brother, where he goes to a morning class for developmentally delayed 3 year olds. He has three amazing teachers, a physical therapist, an occupational therapist, and a speech therapist. His speech went from very little to putting up to 3 words together. Absolutely thrilling to watch him excel and enjoy himself so much!
When we relocated to a new job, we also got new insurance. Unfortunately we didn't realize that it does not cover DME's, so we have to wait for the next open period for us to switch to one that does cover them. Until then we have nothing that covers equipment, which really hurts us. Ben no longer receives SSI, but we are having issues with getting a denial letter. I went up to the social security office once, was told I should get one, but have not gotten one still - months later. But, I would like to avoid going back to the office since it is not in a wonderful neighborhood. If worse comes to worse, I will do what I have to do. When we do finally receive our denial letter, we will be able to apply for TEFRA, which will cover what our insurance does not. Since we do not qualify for anything else, our hands are just going to remain tied for now.
We will be going back to Shriner's Hospital for Children in Shreveport, LA in March to get him checked out and hopefully get his AFO's repaired. I'll try to update more often, but no promises! :)
When we relocated to a new job, we also got new insurance. Unfortunately we didn't realize that it does not cover DME's, so we have to wait for the next open period for us to switch to one that does cover them. Until then we have nothing that covers equipment, which really hurts us. Ben no longer receives SSI, but we are having issues with getting a denial letter. I went up to the social security office once, was told I should get one, but have not gotten one still - months later. But, I would like to avoid going back to the office since it is not in a wonderful neighborhood. If worse comes to worse, I will do what I have to do. When we do finally receive our denial letter, we will be able to apply for TEFRA, which will cover what our insurance does not. Since we do not qualify for anything else, our hands are just going to remain tied for now.
We will be going back to Shriner's Hospital for Children in Shreveport, LA in March to get him checked out and hopefully get his AFO's repaired. I'll try to update more often, but no promises! :)
Saturday, June 23, 2012
New Page!
Hello all!
I have added a new page titled, "Ben's Story". So if you were ever curious about how he was diagnosed or why, hopefully that'll answer some questions! If you have any others feel free to ask!
I have added a new page titled, "Ben's Story". So if you were ever curious about how he was diagnosed or why, hopefully that'll answer some questions! If you have any others feel free to ask!
Sunday, June 10, 2012
Welcome to Oklahoma City, Easley family.
Ben met his new SoonerStart team this past Thursday. They loved Ben and he seemed to do okay with them; but we'll officially start our sessions next week.
So far, everything is okay. Not great yet, but okay. We are still working out a new schedule that works for us here.
I think he's doing better with the change than I am.
Change is good.
Change is good.
Change SUCKS.
Sorry for the negativity there, we've had a really difficult couple of weeks. We moved in on the 25th. On the 29th, our cars received almost $13k worth of hail damage.
Also, our neighbors 2 floors up don't require sleep on the weekends. It is past 1:00 in the morning and they are still going strong. Curse this awesome hearing of mine! I'm never going to get a goodnights sleep again on Fridays/Saturdays.
Welcome to Oklahoma City, Easley family.
P.S. Ben is sleeping wonderfully. He won't sleep without some kind of noise, so it seems to be working for him.
So far, everything is okay. Not great yet, but okay. We are still working out a new schedule that works for us here.
I think he's doing better with the change than I am.
Change is good.
Change is good.
Change SUCKS.
Sorry for the negativity there, we've had a really difficult couple of weeks. We moved in on the 25th. On the 29th, our cars received almost $13k worth of hail damage.
Also, our neighbors 2 floors up don't require sleep on the weekends. It is past 1:00 in the morning and they are still going strong. Curse this awesome hearing of mine! I'm never going to get a goodnights sleep again on Fridays/Saturdays.
Welcome to Oklahoma City, Easley family.
P.S. Ben is sleeping wonderfully. He won't sleep without some kind of noise, so it seems to be working for him.
Thursday, May 10, 2012
A Brand New Adventure
Our life with Ben is about to change tremendously! For the better, we hope!
As some of you may or may not know, we live in a small town in southern Oklahoma. While it may be a good place to raise your children, it lacks the resources we need for a specially abled child such as Ben. So, we are spreading our wings and going north to a suburb of Oklahoma City. We will be closer to his neurologist and opthamologist. Plus, many other resources will be available to him! Please keep us in your thoughts and prayers (if that is your thing) while we make the move and that it is an easy transition for us.
We are letting our oldest finish school here, so we will not be moving until after that is all done.
I have pictures of Ben's new braces that he received from Shriner's at our last visit to Shreveport, LA. I will do my best to remember to post them within a day or two.
Please be patient with me over the next few weeks!
Thank you!
As some of you may or may not know, we live in a small town in southern Oklahoma. While it may be a good place to raise your children, it lacks the resources we need for a specially abled child such as Ben. So, we are spreading our wings and going north to a suburb of Oklahoma City. We will be closer to his neurologist and opthamologist. Plus, many other resources will be available to him! Please keep us in your thoughts and prayers (if that is your thing) while we make the move and that it is an easy transition for us.
We are letting our oldest finish school here, so we will not be moving until after that is all done.
I have pictures of Ben's new braces that he received from Shriner's at our last visit to Shreveport, LA. I will do my best to remember to post them within a day or two.
Please be patient with me over the next few weeks!
Thank you!
Wednesday, April 11, 2012
We're back!
Last week, we made the long trek down to Shriner's Childrens Hospital in Shreveport, LA. He is growing out of the braces for his feet so he was measured for some new ones that actually fit. We picked out Dallas Cowboy ones and we can't wait to go pick them up! What a blessing Shriner's is; without them I'm not sure how we'd be able to provide braces for our little man. They also talked to us about some new stretches for his arms and legs & gave us new braces for his hands as well. He will go back May 3rd for those new foot braces then we won't go back again until October 2012.
The day before we went to Shriner's we had an appointment with Ben's pediatric opthamologist and scheduled surgery for his eyes. If all goes well and we can manage to scrape the 20% for the surgery center and the surgeon, he will have the surgery this coming Friday. It will be one of two surgeries for the year. Three muscles will be corrected on one eye this go around and it should take about 1 1/2 hours. It will be outpatient, so he will go home that day.
We also received each piece of equipment that we ordered and his stroller is wonderful! It provides so much more support than the loaner we had, it's unbelievable how awesome it is for him. I would describe it as the cadillac of special strollers.
Now that you're all up-to-date, here are a couple of pictures from our trip to Shreveport and Easter. Enjoy!
The day before we went to Shriner's we had an appointment with Ben's pediatric opthamologist and scheduled surgery for his eyes. If all goes well and we can manage to scrape the 20% for the surgery center and the surgeon, he will have the surgery this coming Friday. It will be one of two surgeries for the year. Three muscles will be corrected on one eye this go around and it should take about 1 1/2 hours. It will be outpatient, so he will go home that day.
We also received each piece of equipment that we ordered and his stroller is wonderful! It provides so much more support than the loaner we had, it's unbelievable how awesome it is for him. I would describe it as the cadillac of special strollers.
Now that you're all up-to-date, here are a couple of pictures from our trip to Shreveport and Easter. Enjoy!
Labels:
braces,
Easter,
Shreveport,
Shriner's
Location:
Ada, OK, USA
Wednesday, March 21, 2012
Spring Break.
I have been working on a another awareness post, but these past several days have been pretty bumpy. I promise I haven't disappeared completely. Once things clear up and everyone starts feeling "normal" again, I'll start writing more updates.
Have a great week!
Have a great week!
Thursday, March 15, 2012
Cerebral Palsy Awareness Month - Equipment
Benjamin has Spastic Cerebral Palsy, which is the most common form of Cerebral Palsy.
In Ben's case, he has the least common type of S.C.P. in which he is affected in all four of his limbs. He has high muscle tone in both his arms and his legs while also having low muscle tone in his trunk. All of this together makes it very difficult for him to sit or stand without support. He requires specific equipment to help him.
In Ben's case, he has the least common type of S.C.P. in which he is affected in all four of his limbs. He has high muscle tone in both his arms and his legs while also having low muscle tone in his trunk. All of this together makes it very difficult for him to sit or stand without support. He requires specific equipment to help him.
Below are the exact items we recently ordered for Ben:
The gait trainer helps with support so they can learn to bear weight on their feet and from there they can learn to take steps then eventually walk.
Since many children with C.P. cannot support themselves while sitting, they require much needed extra support that a regular stroller cannot provide. That's where this wheel chair comes into the picture. Notice the straps that will go over their chest so they do not fall forward and will be more likely to have better posture.
This chair is yet another way to support the child, but it is used to keep them safe during bath time.
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| Rifton Gait Trainer - Size Small |
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| Quantum Rehab - Manuel Wheelchair - Kids Fast |
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| Rifton Blue Wave Bath Chair - Size Small |
Luckily, we do have insurance so we were only set back the cost of our deductible. But if we were not so lucky, we would have owed upwards of $4000 out of pocket.
Educate yourself. Spread the word!
Educate yourself. Spread the word!
Tuesday, March 13, 2012
Happy Tuesday, Y'all!
Monday, March 12, 2012
Pictures, Pictures, come see some Pictures! : )
Here are a few photos of Ben before and during his casts, in a stroller that has been loaned to us until we get his very own stroller/wheelchair, and also in a gait trainer. For some reason I don't have a photo of just his braces, but I try to find a photo where you can see his braces well enough.
These photos are taken with my phone, so I am sorry for the poor quality. I will try to add some better ones of Ben when I have better internet. : )
These photos are taken with my phone, so I am sorry for the poor quality. I will try to add some better ones of Ben when I have better internet. : )
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| Ben's feet BEFORE casts and braces. |
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| Ben's feet in his casts. |
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| Ben enjoying the loaner stroller from our local health department. |
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| Ben trying out and enjoying a gait trainer. |
Finally. An update!
It looks as though I have not posted since September of last year, so I will do my best to catch you up!
*Our first visit to Shriners was just really an evaluation. They wanted to see where Ben was developmentally and orthopedically. He was measured for casts and braces to help straighten his feet (pictures to be added later), we were given temporary braces for his feet/ankles along with several other things to help his hips and hands. An appointment was then scheduled for the following month to put the casts on his feet.
*In between the first and second visit, we saw a neurologist in Oklahoma City. This was also an evaluation type appointment to give the doctor an idea of where Ben is at developmentally and what our next step needs to be. He suggested an MRI to see where the damage to his brain is, but we couldn't afford it at the time so it is to be rescheduled when we can actually pay for the procedure. We also talked about a muscle relaxer for him, but the improvement rates were so low that we decided it would not be worth it since he is only mild - moderately affected.
*The second visit didn't go quite as planned. He was supposed to have casts put on that I could remove myself 6 weeks later, but the braces he was fitted for did not fit due to the muscles in his ankles being too tight. He needed to be put on a low dose muscle relaxer, which I had not done yet. So, he had regular casts put on and we scheduled an appointment to come in 6 weeks later to get the casts removed and the braces put on after he'd being on the muscle relaxer for a little bit.
*After a phone call to the nurse at his neurologist, Ben was put on Baclofen (the low dose muscle relaxer) to prepare him for his braces.
*Our third visit to Shriner's was our longest and most productive. His casts were removed and his braces actually fit this time (YAY!). He is to wear the braces 23 hours a day until we go back for our forth appointment in April of 2012 to upgrade his braces to a bigger size.
--Other exciting news--
A gait trainer, new stroller/wheelchair, and a bath chair have all been ordered and should be received within the next couple of weeks! We absolutely can't wait! Our insurance is a PPO and sometimes it's difficult to get a gait trainer approved if the child has not reached certain milestones. Luckily we were approved and the process was in fact long, but smooth! We can't wait for Ben to have his new equipment!
*Our first visit to Shriners was just really an evaluation. They wanted to see where Ben was developmentally and orthopedically. He was measured for casts and braces to help straighten his feet (pictures to be added later), we were given temporary braces for his feet/ankles along with several other things to help his hips and hands. An appointment was then scheduled for the following month to put the casts on his feet.
*In between the first and second visit, we saw a neurologist in Oklahoma City. This was also an evaluation type appointment to give the doctor an idea of where Ben is at developmentally and what our next step needs to be. He suggested an MRI to see where the damage to his brain is, but we couldn't afford it at the time so it is to be rescheduled when we can actually pay for the procedure. We also talked about a muscle relaxer for him, but the improvement rates were so low that we decided it would not be worth it since he is only mild - moderately affected.
*The second visit didn't go quite as planned. He was supposed to have casts put on that I could remove myself 6 weeks later, but the braces he was fitted for did not fit due to the muscles in his ankles being too tight. He needed to be put on a low dose muscle relaxer, which I had not done yet. So, he had regular casts put on and we scheduled an appointment to come in 6 weeks later to get the casts removed and the braces put on after he'd being on the muscle relaxer for a little bit.
*After a phone call to the nurse at his neurologist, Ben was put on Baclofen (the low dose muscle relaxer) to prepare him for his braces.
*Our third visit to Shriner's was our longest and most productive. His casts were removed and his braces actually fit this time (YAY!). He is to wear the braces 23 hours a day until we go back for our forth appointment in April of 2012 to upgrade his braces to a bigger size.
--Other exciting news--
A gait trainer, new stroller/wheelchair, and a bath chair have all been ordered and should be received within the next couple of weeks! We absolutely can't wait! Our insurance is a PPO and sometimes it's difficult to get a gait trainer approved if the child has not reached certain milestones. Luckily we were approved and the process was in fact long, but smooth! We can't wait for Ben to have his new equipment!
Thursday, September 29, 2011
So. Yeah.
Life is pretty much the same in the world of Ben. Although he has started jabbering more often and repeating more words. Last night he said 'Papa' back to us and we were so proud! He is getting to where he has more desire to communicate and I love it!
He is having to wear a patch each day over his eye. We have been seeing a Pediatric Opthomologist in OKC. Long drive, but totally worth it. In order to (hopefully) avoid surgery, we are alternating between the eyes each day to make them both stronger. Crossing our fingers for NO surgery! I will write more on that later.
Next week we will be in Shreveport, Louisiana to visit the Shriner's Hospital for Ben's first evaluation! Definitely an exciting time for us, but especially Ben. He will also see a Pediatric Neurologist in OKC on October 10th. This will be done as per request by the Shriner's. Plus, it's something we would have to do eventually. So might as well do it now!
Hope all is well in your part of the world.
Joy
- Posted using BlogPress from Joy's iPad
He is having to wear a patch each day over his eye. We have been seeing a Pediatric Opthomologist in OKC. Long drive, but totally worth it. In order to (hopefully) avoid surgery, we are alternating between the eyes each day to make them both stronger. Crossing our fingers for NO surgery! I will write more on that later.
Next week we will be in Shreveport, Louisiana to visit the Shriner's Hospital for Ben's first evaluation! Definitely an exciting time for us, but especially Ben. He will also see a Pediatric Neurologist in OKC on October 10th. This will be done as per request by the Shriner's. Plus, it's something we would have to do eventually. So might as well do it now!
Hope all is well in your part of the world.
Joy
- Posted using BlogPress from Joy's iPad
Saturday, September 17, 2011
A Glimmer of Hope
We have officially been approved by Shriner's to recieve care for Ben! Hopefully now we can get some braces for his feet/legs so we can start working on putting weight on them. The approval just happened on Thursday of last week, so I'm still not sure exactly how everything is going to happen. I do know we will be going the first week of October to the Shriner's in Shreveport, LA and I can't wait!
Our biggest obstacle right now is getting him a neurological exam. It is apparently harder to get one than I thought. Especially when you're dealing with a difficult front desk employee at your pediatrician, from whom you require a referral. UGH! Is it hard to hire people that are friendly and helpful? Or maybe just helpful? I would take helpful and not friendly because then something would be getting done. I guess all I can do is be patient. But it's so hard when the care of your child hangs in the balance!
I'll try to keep you updated on the progress through Shriner's.
Our biggest obstacle right now is getting him a neurological exam. It is apparently harder to get one than I thought. Especially when you're dealing with a difficult front desk employee at your pediatrician, from whom you require a referral. UGH! Is it hard to hire people that are friendly and helpful? Or maybe just helpful? I would take helpful and not friendly because then something would be getting done. I guess all I can do is be patient. But it's so hard when the care of your child hangs in the balance!
I'll try to keep you updated on the progress through Shriner's.
Saturday, August 13, 2011
Taking One Baby Step Forward...and Two Giant Leaps Back.
I have been including Ben in our nightly bedtime stories, in hopes of speeding up the communication process. To my dismay, he has stopped saying the words he was saying before. Which by the way, weren't many. He looks at us and acts like he understands, but has gone to just giggling. No "Bubba" or "Da" or "Mom"...nothing.
It just seems like we're regressing...not progressing.
Any ideas? Anyone?
- Posted using BlogPress from Joy's iPad
It just seems like we're regressing...not progressing.
Any ideas? Anyone?
- Posted using BlogPress from Joy's iPad
Sunday, July 31, 2011
Baby Steps...
When a child is diagnosed with something like Cerebral Palsy, the road ahead is so very long. Now the steps of processing this diagnosis were as follows for me, but they could obviously be different for others dealing with the same situation.
*First comes devastation. Why? Because your life will never be as you "planned", it will never be normal, and your child will not get to lead the life that you had dreamed for them.
*Second comes anger, because you can't control what is happening to your child and WHY IN THE WORLD IS IT HAPPENING TO YOU?....it's a horribly, dreadful feeling that can spiral into depression if one is not careful.
*Third comes guilt. What could I have done differently for a different outcome? What did I do wrong? When in reality, you didn't do anything wrong. This one took me the longest to process and some days, I still revert back to this feeling of guilt. I think this is a hard one for all mothers in general of disabled children, whether it be Cerebral Palsy or anything else.
*Forth comes hopelessness. What am I supposed to do now? I have this child that may never be able to lead a normal life and will most likely depend on me for the rest of my life. I have no idea how I am going to provide the things that this child needs.
*Fifth comes strength. I can DO this! He needs me and I am going to do whatever it takes to give him a wonderful, fulfilling life! You find strength from sources you never thought you would.
I suppose I am going through the second step again. I am just so frustrated and angry that we live in a world filled with so many resources, yet I cannot give my child what he needs. The government says "You make too much, so we're not going to help you." I would love to meet the bureaucrats who decided they know what the hell they're talking about when it comes to what someone like me can afford on our salary for our disabled child and STILL have money left to eat, make payments on our cars, and every single other thing on our plate. Those "people" would definitely be getting a BIG piece of my mind...
- Joy
*First comes devastation. Why? Because your life will never be as you "planned", it will never be normal, and your child will not get to lead the life that you had dreamed for them.
*Second comes anger, because you can't control what is happening to your child and WHY IN THE WORLD IS IT HAPPENING TO YOU?....it's a horribly, dreadful feeling that can spiral into depression if one is not careful.
*Third comes guilt. What could I have done differently for a different outcome? What did I do wrong? When in reality, you didn't do anything wrong. This one took me the longest to process and some days, I still revert back to this feeling of guilt. I think this is a hard one for all mothers in general of disabled children, whether it be Cerebral Palsy or anything else.
*Forth comes hopelessness. What am I supposed to do now? I have this child that may never be able to lead a normal life and will most likely depend on me for the rest of my life. I have no idea how I am going to provide the things that this child needs.
*Fifth comes strength. I can DO this! He needs me and I am going to do whatever it takes to give him a wonderful, fulfilling life! You find strength from sources you never thought you would.
I suppose I am going through the second step again. I am just so frustrated and angry that we live in a world filled with so many resources, yet I cannot give my child what he needs. The government says "You make too much, so we're not going to help you." I would love to meet the bureaucrats who decided they know what the hell they're talking about when it comes to what someone like me can afford on our salary for our disabled child and STILL have money left to eat, make payments on our cars, and every single other thing on our plate. Those "people" would definitely be getting a BIG piece of my mind...
- Joy
Tuesday, July 26, 2011
This thing called LIFE.
I had taken a hiatus from posting for few days because of some things going on with my husband's health. We discovered that the right side of his heart is enlarged, so we're in the process of trying to find out why. But, we had to travel over 2 hours to the hospital doing his testing, so we got a little off schedule with everything around here.
One of Ben's little quirks is that he HATES change. So when we tried to get him to go to sleep in the hotel room, he put up a huge fight. Once we actually got him to sleep, he didn't stay that way. He woke up several times during the night. Needless to say, 6 A.M. came way too soon!
Once things get calmed down around here, I'll be able to start posting more regularly. I mean, it'll never get totally calmed down, but the normal chaos will be a nice change.
- Joy : )
One of Ben's little quirks is that he HATES change. So when we tried to get him to go to sleep in the hotel room, he put up a huge fight. Once we actually got him to sleep, he didn't stay that way. He woke up several times during the night. Needless to say, 6 A.M. came way too soon!
Once things get calmed down around here, I'll be able to start posting more regularly. I mean, it'll never get totally calmed down, but the normal chaos will be a nice change.
- Joy : )
Tuesday, July 19, 2011
The past few days..
I know I have been absent from the blog for a few days, but I promise I will write a good post for you soon! Benjamin's nurse from SoonerStart comes today and I'm hoping for a productive meeting. : ) I will be asking more about TEFRA and what exactly I'm supposed to do with it.
I'll be back later!
- Joy
I'll be back later!
- Joy
Wednesday, July 13, 2011
Yesterday Ben had his visit with our physical therapist through SoonerStart. We are blessed to have such a wonderful PT; he's great with Ben! Since Ben has decided he's tired of just laying down and is rolling over everyday, we are now working on getting him to get up on his hands and knees. Small steps! : )
I don't have much else to report at the moment, just living day to day. I'm in the process of trying to get an Ergobaby carrier. It will take awhile to get Ben a stroller and I can only carry him so much during the day. So the carrier will be a welcome tool for this momma!
We are also looking into something called TEFRA, it helps families that make "too much" but have a child with a disability. Once I figure out more about how it works, I will write more about it!
I hope everyone is having a wonderful Wednesday!
- Posted using BlogPress from Joy's iPad
I don't have much else to report at the moment, just living day to day. I'm in the process of trying to get an Ergobaby carrier. It will take awhile to get Ben a stroller and I can only carry him so much during the day. So the carrier will be a welcome tool for this momma!
We are also looking into something called TEFRA, it helps families that make "too much" but have a child with a disability. Once I figure out more about how it works, I will write more about it!
I hope everyone is having a wonderful Wednesday!
- Posted using BlogPress from Joy's iPad
Sunday, July 10, 2011
Super Sunday!
I think as a new "tradition", I will start writing about something super that happens on each of our Sundays. Something positive to start the week off with! : )
*We weren't sure we'd ever see the day that Ben rolled completely over. We stretched his legs and showed him the way to move his legs, but we still were unsure about the progress we were making. As you saw in the video below, he DID roll over! From back to front. Now that he figured that one out, he doesn't want to stop! We'll let him play in the floor and once playtime is over, he throws a fit. (I can feel those terrible two's coming on!)
Tonight, he rolled not only from back to belly several times. But he rolled from belly to back! AHH! : ) What a great feeling to know that you have helped your child achieve a goal we weren't sure would ever be achieved.*
- Posted using BlogPress from my wonderful iPad!
*We weren't sure we'd ever see the day that Ben rolled completely over. We stretched his legs and showed him the way to move his legs, but we still were unsure about the progress we were making. As you saw in the video below, he DID roll over! From back to front. Now that he figured that one out, he doesn't want to stop! We'll let him play in the floor and once playtime is over, he throws a fit. (I can feel those terrible two's coming on!)
Tonight, he rolled not only from back to belly several times. But he rolled from belly to back! AHH! : ) What a great feeling to know that you have helped your child achieve a goal we weren't sure would ever be achieved.*
- Posted using BlogPress from my wonderful iPad!
Thursday, July 7, 2011
Braces for Ben
After finding out we do not qualify for Medicaid, DCP (Disabled Children's Program), and that his Social Security Disability payment has been cut off...I decided there is no sense in waiting to schedule appointments that he obviously needs. We will be taking him about an hour away to a place called HANGAR Orthopedics to have him fitted for braces to put on his feet.
He has beautiful, little baby feet but they just happen to bend severely outward so he's not able to bear weight on them right now. We are hoping that with the braces we can start working on standing. I will post more about them once I find out more. At this point I know he needs them to bear weight, but that's about it. I will also be finding out how much we will have to pay out of pocket. The easy part is getting him fitted, the hard part is paying for them...
I'll keep you updated as we go along this next part of our journey! : )
He has beautiful, little baby feet but they just happen to bend severely outward so he's not able to bear weight on them right now. We are hoping that with the braces we can start working on standing. I will post more about them once I find out more. At this point I know he needs them to bear weight, but that's about it. I will also be finding out how much we will have to pay out of pocket. The easy part is getting him fitted, the hard part is paying for them...
I'll keep you updated as we go along this next part of our journey! : )
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